Huntington's Disease Awareness Day: Lighting up the Cira Centre for HD!
Thursday, May 15, 2025
Philadelphia, PA (May 15, 2025)--– The Huntington’s Disease Society of America (HDSA) is proud to celebrate International Huntington's Disease Awareness Day, as a vital part of our ongoing celebration of Huntington's Disease (HD) Awareness Month. A nationwide initiative dedicated to educating the public and empowering families impacted by this devastating hereditary neurodegenerative disease. Throughout the month of May, HDSA has encouraged (HD) families to "Light It Up For HD" an interactive social media campaign where they adorn their houses with blue lights in an effort to raise awareness and offer support to those affected by HD.
To celebrate Huntington's Disease Awareness Day, the Cira Centre in Western Philadelphia is going to "Light Up" their 29 story, skyscaper in bright blue lights, in support of International Huntington's Disease Awareness Day.
HDSA invites you to join and turn up the volume on HD by obeserving, and photographing the bright blue spot in Philadelphia's skyline on the evening of May 15th. This awareness event helps not only spread the word about HD but also raises vital funds to support HDSA’s mission programs, including research, advocacy, and family services.
HDSA is also launching its social media campaign, #LetsTalkAboutHD, creating a powerful digital platform for people to share their HD stories and build a sense of community and solidarity. Follow HDSA on social media to see regular video content released throughout the month, and share your voice using the hashtag #LetsTalkAboutHD.
For more information about Huntington’s Disease Awareness Day, the #LetsTalkAboutHD campaign, and how you can get involved, visit http://www.hdsa.org and follow HDSA on social media.
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About Huntington’s Disease
Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and currently has no cure. Every child of a parent with HD has a 50/50 chance of inheriting the faulty gene. Today, approximately 41,000 Americans show symptoms of HD, with more than 200,000 at risk.
About HDSA
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow. HDSA was founded in 1967 by Marjorie Guthrie, wife of folk legend Woody Guthrie, who lost his life to HD complications at age 55.
Contact:
Weston Greene
Communications Associate
(212) 242-1968 ext. 216
[email protected]